Daisybella's quilt   (Quilt Completed)
| Noonan syndrome, CHD, epilepsy, hypomobility, partially blind
Quilt delivered: 7th Nov 2021
Would love to say thank you so much for the quilt, and everyone that was involved, it's beautiful, my daughter Daisy was in awe when she saw it. She loves it, and had it on her bed last night, she also has it on the sofa, thank you so much, she was amazed of all the different stitches, and the fact loads of people were involved, Thank you so so much xx Sara/Alan/Daisybella
Stitched by: Leanda Vickers
Daisybella was diagnosed with heart disease, and at nearly two she had open heart surgery to replace her pulmonary valve, stretch the aortic valve, (she'll need more surgery in future to fix it), and repair her aortic valve.
She has suffered with epilepsy since 1 yr old, clonic tonic seizures and absence. She also had a hemangioma tumour behind her eye, pushing against eye, which had to be shrunk with propranolol for 16 months. This left her partially blind, as she can not see out of her left eye. She suffers hypomobility, and also has a genetic disorder which was diagnosed at nearly two years old.